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This Privacy Policy provides information on how Pierre Robin Australia Inc. manages personal information collected by us, including personal information collected via this website.

Pierre Robin Australia Inc. recognises the sensitive and sometimes private nature of some forms of information that may be provided in becoming a member or making a donation via our website.  We recognise the importance of ensuring that all personal information collected is treated confidentially and are committed to ensuring that all personal information is only collected, disclosed, used and stored in accordance with the National Privacy Principles set out under the federal Privacy Act 1988.

Use and disclosure of personal information

Any personal information that we collect will only be used and disclosed for the purpose for which it has been provided to us.

Any member of our committee who is provided access to confidential information for the purposes of providing our services will adhere strictly to all privacy policies set out by Pierre Robin Australia Inc.  

Pierre Robin Australia Inc. will not sell or rent personal information collected by the organisation to any external parties.  Disclosure of personal information for any other purpose to a third party will only be done with the express permission of the individual affected.

Where personal information is disclosed to an external party, Pierre Robin Australia Inc. will take steps to ensure that the external party treats such information confidentially and in accordance with the federal Privacy Act 1988.

Pierre Robin Australia Inc. collects and stores information for the following purposes:

  • Register members
  • Receive online donations
  • Maintain contact with members
  • Maintain contact with donors
  • Inform members of upcoming events or programs that may be of interest
  • Inform supporters about our work and achievements
  • Comply with necessary business and accounting standards
  • Comply with Australian Taxation Office requirements.

Email Communications

If you have registered through our website and selected to receive email communications from us, we may use your contact details to send you newsletters, marketing emails or invitations to Pierre Robin Australia Inc. seminars or events, which may be of interest to you.

You can ‘unsubscribe’ at anytime via the link displayed in the footer of our website, or by advising us in writing to info@pierrerobin.org.au.


A cookie is a piece of text asking permission to be placed on your computer's hard drive. If you agree, then your browser adds the text in a small file. The purpose of a cookie is to help us analyse web traffic to and on our site.

Cookies  allows us to respond to you as an individual. By gathering and remembering information about your preferences including log in information etc.

Pierre Robin Australia Inc uses this information only for statistical analysis purposes so that we may improve and update our website to provide a better experience for all.

Accessing Your Personal Information

You have the right to access your personal information, subject to some exceptions allowed by law.  If you would like to view the information we have stored about you, please let us know.  For security reasons your request must be received in writing to enable us to verify your request. Please advise the following:

  • Your Username
  • Your Member Number
  • Full name
  • Address
  • Phone number.

If any personal information we hold about you is not accurate, complete or up to date,  please let us know and in most cases, we will use all reasonable efforts to update the information as quickly as possible.


Pierre Robin Australia Inc. is committed to keeping maintaining the security of all data provided to us and we will take all reasonable precautions to protect your personally identifiable information from loss, misuse or alteration. To prevent unauthorised access or disclosure, maintain data accuracy, and ensure the appropriate use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect online.

Your personal information is securely stored in our database, which is accessed only by authorised committee members of Pierre Robin Australia Inc who have signed confidentiality agreements and have gained clearance to access such information.

Appropriate firewalls and security software are used and regularly updated by Pierre Robin Australia Inc, our Internet Service Provider and Website Hosting Company.

Our web site is secured by secure-aus.com. Any information sent from our browser to our server (and back again) is encrypted whilst in transit using the industry standard 128-bit SSL encryption process.  This includes all credit card and personal information provided.

Changes to our privacy policy

From time to time it may be necessary for us to revise our privacy policy. We reserve the right to change our privacy policy at any time without prior notice.

How you can contact us

If you have any questions in relation to Privacy please contact us via email at info@pierrerobin.org.au.