Personal Stories

Living with a seriously ill child is life changing. The roller coaster of everyday life is at times joyous and others hard to bare. Each and every day, someone, somewhere is searching for answers.

Looking for reasons why.  Trying to find someone to relate to. So much can be learned through the experiences of others.

At Pierre Robin Australia we believe that information is power.

Although our experiences and points of view are individual, so many elements of our stories are the same.

The following stories have been written and provided to us by our members.  All of these families have expressed their wish to share their experiences in the hope that it will help others.   

We would like to extend a huge thank you to all of those who have contributed for taking the time to share your experiences and know that your words will help families just like yours to deal with their circumstances. 

As every journey is personal, no details or changes have been made to any of the following pieces.  We have included each story as it has been  provided to us, as a mark of respect to their journey.

Again - Thank you.]

Should you wish to have your own story included, please email your piece through to Jacinta at info@pierrerobin.org.au