Founders

In September 2006, Mick and Jacinta Cannon were joined in the world by their new baby boy, Balin.  Born blue and in distress, Balin was rushed to the neo-natal intensive care unit before his mother ever got to hold him.  It would be two hours before she would learn he had survived.

Two days later, Mick and Jacinta noticed a comment in Balin’s medical file- “Pierre Robin Syndrome?”  Uninformed, they queried this with the rounds doctors who advised that this was in fact the diagnosis Balin had been given to date. This is how they learned of the diagnosis for their beloved son.

The next morning, 2 pages of printed information from the internet were left by Balin’s crib.  This basic overview prompted more questions,  of which no one had answers.  Like all modern day individuals they turned to the internet for knowledge, but instead of power this brought confusion and despair.  So much of the available information portrayed “worst case” scenarios and conflicting opinions. 

That’s when they  decided….

no one should ever have to go through this alone again!

Pierre Robin Australia (PRAISE) was officially registered in August of 2008.    As a support group for families and carers, PRAISE aims to provide Information, Support and Education to those affected by the condition and empower individuals in managing and living with the condition.

As a registered charity, PRAISE operates by a committee of management.  Our board is made up  of parents, carers, grandparents, professionals and associated organisations officials. 

If you would like to be involved, please contact us to discuss how you can become a volunteer or committee member.